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Wednesday, 31 January 2018

HOORAYYYYY for shovelling!!!

Words I never really thought I would ever want to utter at all, let alone shout out to the world... but it’s kind of how I am feeling these days.

Throughout my journey with Guillain-BarrĂ© Syndrome, I’ve often felt like an unhelpful lump when it comes to chores around the house and especially outside chores. I haven’t safely been able to help with even the easiest, mundane tasks and although I try my best with stuff inside the house, it’s been a whole different situation in dealing with the embarrassment of doing outside stuff where our neighbours can see my slowness and struggling. That horrible pride stuff rears it’s ugly head and I bury into my humiliation..... but not anymore! I’m so close to getting better that challenging myself to get out and try has gratefully grown more important than my feelings of inadequacy.

So this winter, I shovel PROUDLY!

This is my proud face!
I do NOT generally wear hats... if I am wearing a hat... that means it is COLD!
And hood on top of hat..... means it’s COLD with a BITTER wind!


It sounds ridiculous, I know, shovelling snow is certainly not a big deal... until it is. And it’s a big deal to me because I’ve worked really hard to regain the strength and coordination it takes to shovel snow, which I fully realize is often seen as mindless, simple (even if sometimes heavy) work. And shovelling out the boys bathroom break pen may not seem like the grandest fun but I am beyond excited to be able to do it confidently, even if I have to very seriously consider and entirely concentrate on every step, every movement. I use the shovels as ‘walking balance aides’ and I carfully put to work all that I’ve worked so hard to learn in physio so I can properly ‘plant, weight-shift and balance’... all of which helps me to safely manage my newest goal of snow removal. I will admit that I am uuuuubery slow......

Here’s a video snippet to show just how slow... just imagine this snippet being played on constant repeat for an hour or so:



I’m slow and I have to take a LOT of little standing breaks, but that’s okay, too... it just means a little extra time outside in the fresh, crisp air to challenge myself. And today I had a little extra challenge worked in by having to bundle in Enz’s heavy, bulky Tough Duck workwear snowsuit because I left my own snowsuit at camp so I can always be prepared for more sliding when we’re out there! It worked, I didn’t trip or fall down in the extra bulk and I satyed cozy warm while I cleared the boys pen as well as the sidewalk and pathway out to the workshop.

I did need a little sit-down rest when I got as far as the workshop path... but who doesn’t love a snowbank rest??!

Hard to tell in the picture but boy was the wind whipping out there!






















































It’s just another little part of healing but it sure feels good to be a little bit useful again... especially in my favourite season of all because I do love any excuse to get out and enjoy Winter!!!

Monday, 29 January 2018

Slidingly overjoyed!

The past couple of weeks, for me, have been all about... SLIDING!!!



No, I don’t have children. No, I don’t care that it may seem childish. My family and friends have been bombarded with my YouTube sliding posts of the exhilarating fun (even if maybe to the point of annoying) on my social media accounts but many have been beyond kind and supportive of the silliness. Sometimes silliness is fun! But it’s more than that...

A few days ago marked Year Three of working toward healing from the sudden attack of Guillain-BarrĂ© Syndrome that paralyzed my legs for a time. It’s been a really rough few years in the struggle of learning to walk again and although three years doesn’t sound like a long time, it sure has felt like forever to me. I love to be active. I love to be outside having fun... especially in winter!

What I've missed the absolute most over these long three years has been skiing. I love that quiet ride up the chairlift. I love standing for those few seconds at the top of the mountain, looking down and planning my cutting path as I tap-test my skis to make sure their bindings are perfectly set to my boots while adjusting my goggles and making sure I’m all tucked in and zipped up for swishing down through the freezing air on the run that I always just know is going to be my BEST one yet! And I love to get lost in the sound of my skis cutting through the snow, the feel of my poles planting and guiding my way down the winding trails and the side-sight of the fresh snow spray that follows my every turn. It’s an awesomeness that I can’t even fully describe my feelings of. Pure magic.

I’ve not been up a chairlift in three years, since the days before the GBS took me down and although I have been incredibly bummed about that fact I have worked really, REALLY hard to not let myself complain about being stuck inside during winter. Well, you might be thinking, there are many other winter activities you could have been doing even if you couldn’t ski... and you would be right, there are many other winter activities to be had. However, my usual love of cold weather has been very challenged with the disease and it’s not been exactly fun. Before I got sick, I hardly ever wore a winter coat, except on the ski hill where speeding down through cold is just dangerous. I just never really seemed to feel cold and alternately struggle with being too warm in the summer. But, cold on damaged and healing nerves is excruciatingly painful and even in opening the pen door for the boys bathroom visits set me into uncontrollable, painful shaking fits even while bundled in multiple layers of heat-formulated clothing... winter outside time quickly became terrifying for me. This past Fall was awful for the freezing shudders taking me over but as Winter set in I started to notice not as much pain from the cold, except in my feet, lower legs and hands where it feels like sharp knives are continually poking and slicing my skin if even a hint of cold air touches them. Heat socks have become my closest ally in life these days! Anyhow, my slowly healing nerves finally seem to have healed enough that with proper bundling I really can happily spend a little time outside in my beloved  Winter having a tiny bit of wintertime FUN!

Why sliding??

Sliding is fun, that’s why.

And more importantly... it’s easy freedom. It’s a few seconds of FAST ZOOMING after years of being stuck at turtle speed (no offense meant to turtles, I love turtles!). In those seconds, I am not stuck struggling, trudging and tripping through the snow with my Stix, instead, I am flying down the hill just like everything is all back to normal. Except it’s not quiiiiiiite normal yet because I still have the fear before I make myself push off at the top. I question my body’s ability to get me back up the hill before I even get going down. I question my steering and stopping abilities and whether it’s worth risking a trip into the lake. I am scared to let go every time... but more than the scared, I am grateful that I find the strength to push off and fly down that hill for the gift of getting to feel like my old, capable self again in those few joyous seconds of not having to admit that life is still going to be slow for at least a little while longer.

I am still working at healing. I do my daily physio exercises, I attend my Neurologist appointments and continue to go through the MRI and Nerve Testing to guage my slow improvements, I concentrate on controlling every step I earn and I keep my attitude set on forward encouragement over self-pity, which I still thankfully REFUSE to give in to... but sometimes a little lift in spirit with something that’s easy is a good thing, too. Yes, I’ve been thriving in just letting completely loose with our fun sliding antics but I’m also still learning lessons, I do have to be careful. After our first invigorating day of sliding, it wasn’t until hours later when we were home and I was changing into a comfy-cozy onesie to warm up and relax that I noticed I must have smashed my shin on ice or a rock hidden beneath the snow... my leg was all scratched up and bloody, already swelling and bruising and I hadn't a clue that I had even hurt myself. This past weekend, I came home with bruised knees and a bruised and scratched elbow from all the lake ice landings. I did feel the elbow smash, which is good, but I didn’t feel the leg smashes as painful because I still don’t have a lot of feeling back in my legs yet. Kind of scary that I can hurt myself and not feel the damage when it happens, and by the size of the bruises, I totally should have felt those hits. So, we learned that we should make sure there is nothing in our path that might cause injury, which probably should have been common sense ever our ‘let’s just give’er a go’ method of forging sliding runs aimed head first toward the lake.

All in all, it has been beyond incredible to just let loose and have a little real winter fun. The cold air is refreshing, the speedy descent is a complete and invigorating rush and the gift of being able to just be me again is worth all the time it’s taken to work my way back. I still stumble, I still have to plan each step I take, I still need my Stix to safely traverse the outside world BUT in challenging myself to let go of some of my latelyfound fears I am beginning to heal even more in my heart.

And so, this silly sliding fun will continue, and who knows... maybe come springtime I’ll be running back up that hill after every fun and hysterical slide down!


Monday, 1 January 2018

First day of a brand new year at camp!



After we were out two days ago and the ice appeared about to take complete hold of the lake, I was SO excited to get out today and see if it actually had... Much to my dismay, the winds and currents had changed and carried the forming ice chunks away. It was still a beautiful day and I thought to myself... ‘what better way to start a fresh year than with a bravery test?!’ and announced to Enz and the boys, “We’re all going down to visit the shore!” Enz wasn’t so sure about my plan but the snow wasn’t deep and so, off we went and we all survived and managed just fine! ☺️



The boys were not thrilled at heading outside and tried to hide their dad’s boots... They are not happy campers about the cold-snap we’ve been in and didn’t believe me when I told them it had actually warmed up a little.



They also were not impressed that their dad hadn’t backed the car in and that they were expected to walk to the back door.



“Really, Dad... really.....??l”



Play is a really good helper... the instant I started to wobble and worry a little in question of my decision, he leaned his lil’ bum in to help steady me and keep us going.



Enz gave the boys a little ‘quick walk’ time while I slowly followed along.



Then we took a couple of wintery family pictures by the lake; the boys were very cooperative!



Seriously... cooperative.....



.....until it was Dad’s turn for pictures and Play decided he was DONE and going inside!!



So we all headed inside...



Going up the hill was slow and hard work but I have two very patient boys who were more than willing to help me...



“Don’t worry, Mama, we’re checkin’ the path closely... just step where we step and you’ll be safe!”



And sure enough, my gentle, patient, caring boys led me up the hill safe and sound!



And then they conked out for a nap...



Coffee time just became wayyy easier at camp!



I was beyond chilled from our little shore visit so I was uberly grateful I had forgotten this cozy shawl in the cabin on our last visit and had this hot coffee to help me warm up!



I don’t know why, but I couldn’t resist the old ‘One lump, or two??” and dissoved into hysterical laughter... Enz did not think it was funny in the least.




All in all... it was a pretty sweet day!